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Version: 0.0.6 | Published: 15 Mar 2024 | Updated: 433 days ago
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North West London Integrated Care Record (NWL ICR)

Dataset

Summary

DOI Name:
Not Available

Documentation

Description:
This dataset is a merged dataset of the existing datasets already published. This dataset contains all the columns made available within the individual datasets but as one large amalgamated dataset. This provides a longitudinal linked dataset of NWL patients to support pathway analysis, population health analysis and research analytics that requires data from various care settings.
Is Part Of:
SUS, PRIMARY CARE, MENTAL HEALTH, COMMUNITY

Coverage

Spatial:
United Kingdom,England,London,Brent; United Kingdom,England,London,Ealing; United Kingdom,England,London,Hammersmith and Fulham; United Kingdom,England,London,Harrow; United Kingdom,England,London,Hillingdon; United Kingdom,England,London,Hounslow; United Kingdom,England,London,Westminster; United Kingdom,England,London,Kensington and Chelsea
Typical Age Range:
0-150
Follow Up:
> 10 YEARS
Physical Sample Availability:
NOT AVAILABLE
Pathway:
This dataset is representative of the patient pathway as we have data from all care settings (primary care, acute, mental health, community and social care). We also have data for all disease areas and hence able to track the pathway for all diseases.

Provenance

Origin

Purposes:
  • ADMINISTRATIVE
  • CARE
  • OTHER
Sources:
OTHER
Collection Situations:
OTHER

Temporal

Accrual Periodicity:
MONTHLY
Distribution Release Date:
30 January 2020
Start Date:
01 April 2015
Time Lag:
1-2 MONTHS

Accessibility

Access

Access Service:
Researchers will have access to a VDI environment with a specific username and password. The researchers will get access to the datasets that is present in the hub's catalogue and would be able to carry out their research within the safe haven. There are restrictions applied which prevents the researchers from taking data out of the safe haven, once the research/analysis is completed the admin team will need to be contacted for taking the analysis off the safe haven.
Delivery Lead Time:
1-2 MONTHS
Jurisdictions:
GB
Data Controller:
Joint data controller model across North West London
Data Processor:
North West London Integrated Care Board (NWL ICB) North East London Integrated Care Board (NEL ICB) North of England Commissioning Support Unit (NECS)

Usage

Data Use Limitations:
NO RESTRICTION
Data Use Requirements:
  • COLLABORATION REQUIRED
  • INSTITUTION SPECIFIC RESTRICTIONS
  • PROJECT SPECIFIC RESTRICTIONS
  • TIME LIMIT ON USE
  • USER SPECIFIC RESTRICTION
Resource Creators:
NHS NWL ICS; Discover-NOW
Is Referenced By:
Bottleet al. BMC Medical Informatics and Decision Making (2020) 20:71 https://doi.org/10.1186/s12911-020-1082-7

Format and Standards

Vocabulary Encoding Schemes:
  • LOCAL
  • OPCS4
  • READ
  • SNOMED CT
  • NHS NATIONAL CODES
  • ODS
  • ICD10
Conforms To:
  • LOCAL
  • NHS DATA DICTIONARY
  • OTHER
Languages:
en
Formats:
  • Excel
  • SQL
  • Tableau
  • R

Enrichment and Linkage

Qualified Relations:
This can be linked to: Accident and Emergency Outpatient Care High Cost drugs Patient level data Primary care events Primary care prescriptions Adult social care Mental Health Community
Derivations:
Long Term Conditions Electronic Frailty Index Q-Admissions Patient Segments Risk Segments

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
2,653,250
Count
08 December 2020