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Version: 0.0.6 | Published: 15 Mar 2024 | Updated: 434 days ago
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North West London Coordinate My Care (NWL CMC)

Dataset

Summary

DOI Name:
Not Available

Documentation

Description:
List of patients with CMC care plan (end of life care plan).
Is Part Of:
CMC

Coverage

Spatial:
United Kingdom,England,London,Brent; United Kingdom,England,London,Ealing; United Kingdom,England,London,Hammersmith and Fulham; United Kingdom,England,London,Harrow; United Kingdom,England,London,Hillingdon; United Kingdom,England,London,Hounslow; United Kingdom,England,London,Kensington and Chelsea; United Kingdom,England,London,Westminster
Typical Age Range:
0-150
Follow Up:
> 10 YEARS
Physical Sample Availability:
NOT AVAILABLE
Pathway:
This dataset covers patients across all pathway and information related to their CMC record including resuscitation details.

Provenance

Origin

Purposes:
  • ADMINISTRATIVE
  • CARE
  • OTHER
Sources:
OTHER
Collection Situations:
OTHER

Temporal

Accrual Periodicity:
MONTHLY
Distribution Release Date:
06 May 2020
Start Date:
25 July 2012
Time Lag:
1-2 MONTHS

Accessibility

Access

Access Service:
Researchers will have access to a VDI environment with a specific username and password. The researchers will get access to the datasets that is present in the hub's catalogue and would be able to carry out their research within the safe haven. There are restrictions applied which prevents the researchers from taking data out of the safe haven, once the research/analysis is completed the admin team will need to be contacted for taking the analysis off the safe haven.
Delivery Lead Time:
1-2 MONTHS
Jurisdictions:
GB
Data Controller:
Joint data controller model across North West London
Data Processor:
North West London Integrated Care Board (NWL ICB) North East London Integrated Care Board (NEL ICB) North of England Commissioning Support Unit (NECS)

Usage

Data Use Limitations:
NO RESTRICTION
Data Use Requirements:
  • COLLABORATION REQUIRED
  • INSTITUTION SPECIFIC RESTRICTIONS
  • PROJECT SPECIFIC RESTRICTIONS
  • TIME LIMIT ON USE
  • USER SPECIFIC RESTRICTION
Resource Creators:
NHS NWL ICS; Discover-NOW
Is Referenced By:
Bottleet al. BMC Medical Informatics and Decision Making (2020) 20:71 https://doi.org/10.1186/s12911-020-1082-7

Format and Standards

Vocabulary Encoding Schemes:
LOCAL
Conforms To:
  • LOCAL
  • OTHER
Languages:
en
Formats:
  • Excel
  • SQL
  • Tableau
  • R

Enrichment and Linkage

Qualified Relations:
This dataset can be linked with all other datasets available in our metadata catalogue as every patient will be identified using a unique patient key that can be used to link
Derivations:
Long Term Conditions Electronic Frailty Index Q-Admissions Patient Segments Risk Segments

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
19,056
Count
08 December 2020